Tag: community

Remembering the Disabled Victims of Filicide

graphic of 3 abstract lit candles with the text reading disability day of mourning, remembering people with disabilities murdered by their families

Courtesy of https://disability-memorial.org/

Every year on March 1st we acknowledge the Disability Community Day of Mourning. This year, more than any other, will mark a very different look to the way we mourn as a community. In the face of a pandemic that has had a disproportionate effect on disabled people and their communities, it is more important for us to honor the lives of disabled people murdered by those closest to them. Disabled people in our communities are generally ignored and it has become even more difficult to raise awareness of the problem of filicide of disabled people with the constant onslaught of tragedy caused by Covid-19.

Disabled people are receiving significantly less support than non-disabled people when it comes to healthcare specifically related to Covid-19. With ICUs being forced to prioritize life-saving measures based on criteria that is beyond the understanding of laypeople, including taking into account perceived “quality of life” as a determining factor in some cases. Disabled people are far too often seen as having less “quality of life” than non-disabled people which leads doctors to place them further down the priority list when it comes to finite resources in life-saving measures. This specific criterion frequently demonstrates that even (or especially???) doctors do not have a fundamental understanding of what it actually is to be disabled.

In Canada we are also facing the enshrinement in law of the assumption that disabled people have less “quality of life” in the amendments being proposed to Canada’s Criminal Code and Medical Aid in Dying laws through Bill C-7 which is currently being debated in Parliament. Bill C-7 includes expanding MAiD to people who experience “grievous and irremediable medical condition” but do not have an immediately foreseeable risk of death due to their condition. The United Nations has come down on this proposed amendment, citing that as a signatory nation on the UN Convention on the Rights of Persons with Disabilities, Canada would be in violation of that convention if the amendment to our Criminal Code is passed.

When it comes to the murder of disabled people by family and support people, we see the “quality of life” argument brought up in almost every single case. How often have we heard someone who murdered a disabled person defend themselves (usually to very sympathetic audience) by proclaiming that the victim was suffering? That their life was miserable, sad, pain-filled, and restrictive. That the murderer would want someone to do the same (kill them?) for them if they had been disabled.

The idea that some lives, especially disabled lives, are “less than” other lives is a terrifying and dangerous one. Subjective criteria like “quality of life” and “grievous and irremediable” open the door for increased discrimination, decreased social support, and as demonstrated by the ongoing pandemic, decreased access to resources that will sustain or improve a life for people who don’t conform to the “standard model” of what personhood is perceived to be.

The ongoing pandemic and Canada’s Bill C-7 are just large-scale demonstrations of what can happen when peoples’ lives are assigned “value” by some arbitrary set of criteria. We see smaller demonstrations of the same every time a disabled person is murdered by someone they are supposed to trust. It will be difficult to mourn the disabled lives lost to MAiD and the pandemic because there will be so many and it will be in a hospital or under a doctor’s care. We will continue to mourn disabled people who die violent deaths at the hands of trusted individuals and hope that the parallels are drawn between the three types of event.

Today, we remember and mourn:

Terri-Lynn Thompson – murdered by her husband October 14, 2019 in Belleville Ontario

Florence Girard – neglected by her paid attendant until she starved to death on October 13, 2018 in Vancouver British Columbia

Douglas Fischer – murdered by his daughter’s ex partner, part of a multiple murder, March 29, 2018 in Bluevale, Ontario

Levi Illingayuk – killed by his son in a fight, February 3, 2018 in Clyde River, Nunavut

Ninon Hardie – murdered by her son, December 6, 2017 in Toronto, Ontario

Richard Dubuc – killed by his brother, October 5, 2017 in Montreal, Quebec

Ryanna Grywacheski – murdered by her boyfriend, September 16, 2017 in Marystown, Newfoundland

Kaylie Lis-Lalande – neglected by her mother until she died from complications from starvation and dehydration, September 4, 2017 in Oakville, Ontario

Jocelyne Lizotte – killed by her husband February 20, 2017 in Montreal, Quebec

Lydia Whitford – died from unknown causes suspected to be the result of homicide or neglect at the hands of her foster mother, July 14, 2016 in Stonewall, Manitoba

Ronald McCabe – murdered by his son, March 7, 2016 in Kitchener, Ontario

Irene Carter – murdered by her daughter, January 13, 2016 in Lethbridge, Alberta

Jessica Hagan – murdered by her mother, September 8, 2015 in Cranston, Alberta

Anne Schmidt – murdered by her son, July 5, 2015 in Vineland, Ontario

Emily Janzen – murdered (along with her mother and aunt) by her father, May 7, 2015 in Rosedale, British Columbia

Celebrating International Day of People with Disabilities

By Mary Wilson

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The topic for this year’s International Day of People with Disabilities is “Not all disabilities are visible.” The awareness and discussion of invisible disabilities is close to my heart and always on my mind. Invisible disabilities are varied and, as the name suggests, frequently hidden. This makes them hard to broadly define and changes the conversation around what disability means. There is still significant stigma around mental illness, neurological disorders, and other disabilities that have not immediately identifiable components.

I, personally, define disability as something inherent to a person that disables their interactions with and inclusion in society. It’s not just about encountering barriers to physical spaces, it’s not about medical issues that require frequent intervention or monitoring. It goes far beyond and far deeper than the physical and medical aspects of illness, injury, or other bodily variations. It is something unchangeable about a person that makes their inclusion and participation in every day activities impossible, unlikely or difficult.

I am the parent of two children with invisible disabilities. Labeling my children as disabled is still something I struggle with and frequently just dance around while juggling multiple medications, specialists, appointments, classroom and learning adaptations and ensuring that my kids have the emotional support and tools to deal with the knowledge that they are “different.”

My struggle with the label comes from a feeling of not having earned the right to it. Because our needs and challenges aren’t “serious” or severe even though we deal with them every hour of every day, my kids don’t face major barriers to access, they can play and socialize and attend class. They have what I would consider “passing rights” as non-disabled which I’ve internalized as having less claim to the label and being reluctant to use it. I have met numerous families who have faced SIGNIFICANT barriers to their inclusion in activities I and my children take for granted and I feel like appropriating the label, even in the context of disability pride, may not be the most sensitive thing to do.

This is a common problem amongst people with invisible disabilities. Because they don’t have to face obvious physical barriers, because some days their disability doesn’t affect their lives much, because the world outside their closest circle doesn’t perceive them as “other” those with invisible disabilities are prone to rejecting or downplaying the label of “disabled.” As my involvement in the disability pride movement has grown, my relationship with the label has changed.

Being able to embrace the label “disabled” is a journey and an adventure. Making sure my children are able to share that label with people we love and admire is a privilege. I will continue to grow my relationship with invisible disabilities and with my children, allowing the experience of parenting to develop under the lens of invisible disability. I will allow my children to chose their own labels and develop their own relationships with their bodies and minds, to explore what makes them disabled and identify how their disability provides them a unique viewpoint and experience.

A Podcast Recommendation; Canadian True Crime

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The International Disability Day of Mourning is March 1st, we mark it every year here and remember the victims with heavy hearts.

One of the victims Gerianne and I discuss often is Tracy Latimer. Her murder was a shock to all Canadians and is still at front of mind when we think and talk about filicide of disabled people. The support her murderer has received, still receives, is something neither of us can wrap our heads around.

I have been on a bit of a true crime kick lately, listening to the Canadian True Crime Podcast on my frequent long drives dropping my kids off and picking them up from school. I’m going through the episodes, oldest to newest, and a few days ago I came across Episode 37, Tracy Latimer, originally released in December, 2018.

When I saw who the victim was for this podcast, I was immediately ready to delete all subsequent episodes from my phone, I was mentally preparing myself for a take that was sympathetic to Tracy’s murderer, as is so often the case but I was willing to give the host, Kristi Lee, a shot. She had impressed me with her reasonable and balanced take on many other crimes and I had a slight hope that she would be able to tackle this one with the same fairness.

I was right to give her a chance. I still got very angry listening to Tracy’s story and the story of her murder but not at the host. Lee presented the case well and was incredibly neutral in her discussion of the details of the case, the support Tracy’s murderer has received and the anger about both that has come from the disability rights community. I could not tell whether Lee supported Tracy’s murderer or thought his conviction was just.

If you are unfamiliar with the Latimer case and are interested in learning more, I highly recommend Canadian True Crimes Episode 37, Tracy Latimer. It does go into a lot of detail so if you’re uncomfortable with descriptions of murder, this may not be the podcast for you. I learned a fair bit about the case and about the push for adding “compassionate homicide” to Canada’s legal code.

Call for Books!!!

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Truro, Nova Scotia holds a special place in my heart for many reasons. One of them is how they rally together when tragedy strikes.

Recently, there was a significant fire in downtown Truro that decimated several well-loved local businesses. King Koin Laundry and Tanning, T&V Electronics, Truro Kung Fu Kenpo School, and NovelTea Bookstore and Café were all lost in the fire. The people of Truro have done what they always do, and joined forces to help keep these amazing businesses afloat and a part of the community while they figure out how to rebuild.

NovelTea holds an extra special place in my heart. As a used bookstore and café, they sell 2 of the only things I am willing to splurge on for myself, great coffee and BOOKS!

Books do not usually survive any kind of disaster. NovelTea lost so very many goods that are irreplaceable however for folks like me who were born with a reading list we will never complete, we have an abundance of books that we will probably never read (again). We can’t replace the artwork from the Truro Art Society, we can’t replace the beautiful handmade mugs and dishes, we can’t replace the amazing book-themed merchandise, nor the amazing desk/counter made from old books but we can help them replace their book inventory.

Many businesses in Truro and Colchester County are accepting donations of used books to help NovelTea rebuild. The book drive closes October 3rd.

Here’s the list so far:

The Blunt Bartender 563 Prince St, Truro

Skin Decision 1 Queen St, Truro, NS

Masstown Movement Fitness 1101 Masstown Rd, Debert

Jimolly’s Bakery Café 76 Inglis Pl, Truro, NS

Calling Corners 147 Esplanade St, Truro, NS

Engine Room Pub 166 Esplanade St, Truro, NS

Wink Day Spa 49 Inglis Pl Unit #1, Truro, NS

Hub Cycle 33 Inglis Pl, Truro, NS

Bike Monkey 130 Esplanade St, Truro, NS

Mingos Music 590 Prince St, Truro, NS

Truro Farmers Market 15 Young St, Truro, NS

Thrown Together Pottery 37 King St, Truro, NS

Honeycomb Health Market 805 Prince St, Truro, NS

Spencer House 20 Dominion Street, Truro, NS

Nova Scotia Cooperative Council 347C Willow St, Truro, NS

The Trainyard General Store 53 Portland St, Dartmouth, NS

Rolling Sea Tattoo 802 Prince St Suite 102, Truro, NS

G&G Computers 15 Arlington Pl, Truro, NS

My Home Mercantile 10 Inglis Pl, Truro, NS

The Nelson House Bed & Breakfast 138 Main St E, Stewiacke, NS

Truro Brewing Company 53 Inglis Pl, Truro, NS

Anther & Apiary 8 Dominion St, Truro NS

Or by pick up, email olivia@skindecision.ca

Accessible Online Banking?

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Gerianne sitting at her desk wearing her head pointer and typing with it

When out and about in the “real world” we encounter a number of barriers to accessibility. A step into a store that’s too high for a wheelchair to climb safely, sidewalks closed for construction, signs in the middle of paths making it impossible for a wheelchair, powerchair or stroller to pass, doors without automatic openers, the list goes on…

I tend to think of the internet as a place with fewer barriers to accessibility. Most computer users with mobility issues have figured out adaptations to use their hardware, people who are hard of hearing, Deaf, or deaf have access to closed captions, folks who are vision impaired, blind, or have reading comprehension problems have screen readers, people with writing difficulties have voice to text for typing (which doesn’t work well for people with accents or speech impediments but that’s another story), etc…

But sometimes a barrier crops up that I don’t expect, in a place I never imagined. Gerianne was looking into online banking and came across a prompt for a digital signature. This is a barrier to access for folks who don’t have the dexterity to use a mouse and don’t have a touch-pad connected to their desktops.

We’ve encountered other barriers to access online too and they usually involve proving identity or the “I am not a robot” things. Timed tests for proving you are not a robot are the most common ones we encounter but I’m sure there are more. We do our best to navigate through them but I’m growing more aware of the lack of inclusion in the design process in a space that I thought was truly for everyone.

User experience designers need to be more aware of the barriers their users encounter, the same way designers of physical spaces need to build that awareness. I don’t have a solution for any of these barriers but it is important to make note and call them out when we encounter them so that we can have a more inclusive, accessible experience, online and offline.

Having one “standard” model of human that all of our environments are build around prevents full, equal access. No two bodies or minds have the same abilities and that’s part of what makes the world interesting and fun.