Tag: inspiration

2020 Reflections

[responsivevoice_button voice=”US English Female” buttontext=”Listen to Post”]Blurry image of a bulletin board with multi-colour stars, cards and photos

So, that was a year we’ll never forget, wasn’t it?

2020 was an unexpected rollercoaster and while I am not sorry to see the end of it and I’m eager to move forward and greet 2021 with hope for less chaos, I want to recognize some truly amazing things that 2020 brought us at DisabilityPride.net.

Firstly, Gerianne and I started 2020 off with a new adventure, participating in TeamWork Cooperative’s Self Employment Workshop where I learned just how much Gerianne hates market research and Gerianne and I both learned that there are many ways to go about building a successful business and we have to determine our own definition of successful. We enjoyed getting to know many other entrepreneurs and made a few friends while we were attending the workshops. Unsurprisingly, the workshop was cancelled in mid-March when everything was thrown into lockdown. While Gerianne did not “graduate” from the program we did gain valuable experience there and are incredibly grateful to TeamWork for giving us the opportunity to participate.

As we entered lockdown and people were required to isolate for a variety of reasons, our staffing pool became fairly shallow. Gerianne and I were together almost all day, almost every day for a fair chunk of March and April due to various isolation and quarantine requirements. This would have probably driven most working relationships into the ground but we managed to flourish as a team. The main part of the reason for this was our ability to get along and communicate very well. We both had bad days, we both had good days. They didn’t always coincide but we were able to work together through them and produce some amazing content and a wide variety of projects.

Gerianne was determined to not sit idle while the world was essentially shut down. She completed and excelled at several courses on online marketing and search engine optimization. We both participated in and completed ARCH Disability Law’s Community Champions stream on the United Nation’s Convention on the Rights of Persons with Disabilities Optional Protocols and how those can be used by disability rights activists in Canada. It was an eye-opening experience that gave us insight into the various avenues for and challenges with defending inclusion and disabled people’s human rights within Canada and around the world.

DisabilityPride.net just finished our first newsletter (check it out if you haven’t seen it!) and we have started to explore video production. We have big ideas and big plans, many of which started forming during this complicated adventure in various stages of lockdown.

Gerianne also began the adventure of diversifying her income opportunities and has been incredibly successful selling vintage and second-hand furniture and décor. We have also collected a number of stories from Gerianne’s customers that we hope to turn into either posts on the blog or a collection of vignettes for the newsletter’s next edition.

Though this year was professionally a success, I would be remiss to not acknowledge the difficulties in the non-professional sphere. I spent a significant length of time away from my children as they were visiting family out-of-province when lockdown began. Gerianne and I spent almost every night I was here with my kids reading us bedtime stories. I am forever grateful to my family, who kept my kids safe, happy and healthy during a time their father and I couldn’t be there with them physically.

Gerianne has been diligent about maintaining the health and safety of herself and her attendants, which means adhering to all guidelines from the Department of Health. As a result, she has been home more often in the last 9 months than she probably has in the last 4 years. She has missed participating in her community, including church, immensely. She has also deeply missed seeing her family and friends.

We have had an unprecedented year. 2020 will be a forever bittersweet time but I am proud to have accomplished so much during a global crisis. If there had to be anyone by my side during such an event, I’m infinitely grateful I had Gerianne (and my family) with me for this adventure.

Celebrating International Day of People with Disabilities

By Mary Wilson

[responsivevoice_button voice=”US English Female” buttontext=”Listen to Post”]

The topic for this year’s International Day of People with Disabilities is “Not all disabilities are visible.” The awareness and discussion of invisible disabilities is close to my heart and always on my mind. Invisible disabilities are varied and, as the name suggests, frequently hidden. This makes them hard to broadly define and changes the conversation around what disability means. There is still significant stigma around mental illness, neurological disorders, and other disabilities that have not immediately identifiable components.

I, personally, define disability as something inherent to a person that disables their interactions with and inclusion in society. It’s not just about encountering barriers to physical spaces, it’s not about medical issues that require frequent intervention or monitoring. It goes far beyond and far deeper than the physical and medical aspects of illness, injury, or other bodily variations. It is something unchangeable about a person that makes their inclusion and participation in every day activities impossible, unlikely or difficult.

I am the parent of two children with invisible disabilities. Labeling my children as disabled is still something I struggle with and frequently just dance around while juggling multiple medications, specialists, appointments, classroom and learning adaptations and ensuring that my kids have the emotional support and tools to deal with the knowledge that they are “different.”

My struggle with the label comes from a feeling of not having earned the right to it. Because our needs and challenges aren’t “serious” or severe even though we deal with them every hour of every day, my kids don’t face major barriers to access, they can play and socialize and attend class. They have what I would consider “passing rights” as non-disabled which I’ve internalized as having less claim to the label and being reluctant to use it. I have met numerous families who have faced SIGNIFICANT barriers to their inclusion in activities I and my children take for granted and I feel like appropriating the label, even in the context of disability pride, may not be the most sensitive thing to do.

This is a common problem amongst people with invisible disabilities. Because they don’t have to face obvious physical barriers, because some days their disability doesn’t affect their lives much, because the world outside their closest circle doesn’t perceive them as “other” those with invisible disabilities are prone to rejecting or downplaying the label of “disabled.” As my involvement in the disability pride movement has grown, my relationship with the label has changed.

Being able to embrace the label “disabled” is a journey and an adventure. Making sure my children are able to share that label with people we love and admire is a privilege. I will continue to grow my relationship with invisible disabilities and with my children, allowing the experience of parenting to develop under the lens of invisible disability. I will allow my children to chose their own labels and develop their own relationships with their bodies and minds, to explore what makes them disabled and identify how their disability provides them a unique viewpoint and experience.

Call for Books!!!

[responsivevoice_button voice=”US English Female” buttontext=”Listen to Post”]

Truro, Nova Scotia holds a special place in my heart for many reasons. One of them is how they rally together when tragedy strikes.

Recently, there was a significant fire in downtown Truro that decimated several well-loved local businesses. King Koin Laundry and Tanning, T&V Electronics, Truro Kung Fu Kenpo School, and NovelTea Bookstore and Café were all lost in the fire. The people of Truro have done what they always do, and joined forces to help keep these amazing businesses afloat and a part of the community while they figure out how to rebuild.

NovelTea holds an extra special place in my heart. As a used bookstore and café, they sell 2 of the only things I am willing to splurge on for myself, great coffee and BOOKS!

Books do not usually survive any kind of disaster. NovelTea lost so very many goods that are irreplaceable however for folks like me who were born with a reading list we will never complete, we have an abundance of books that we will probably never read (again). We can’t replace the artwork from the Truro Art Society, we can’t replace the beautiful handmade mugs and dishes, we can’t replace the amazing book-themed merchandise, nor the amazing desk/counter made from old books but we can help them replace their book inventory.

Many businesses in Truro and Colchester County are accepting donations of used books to help NovelTea rebuild. The book drive closes October 3rd.

Here’s the list so far:

The Blunt Bartender 563 Prince St, Truro

Skin Decision 1 Queen St, Truro, NS

Masstown Movement Fitness 1101 Masstown Rd, Debert

Jimolly’s Bakery Café 76 Inglis Pl, Truro, NS

Calling Corners 147 Esplanade St, Truro, NS

Engine Room Pub 166 Esplanade St, Truro, NS

Wink Day Spa 49 Inglis Pl Unit #1, Truro, NS

Hub Cycle 33 Inglis Pl, Truro, NS

Bike Monkey 130 Esplanade St, Truro, NS

Mingos Music 590 Prince St, Truro, NS

Truro Farmers Market 15 Young St, Truro, NS

Thrown Together Pottery 37 King St, Truro, NS

Honeycomb Health Market 805 Prince St, Truro, NS

Spencer House 20 Dominion Street, Truro, NS

Nova Scotia Cooperative Council 347C Willow St, Truro, NS

The Trainyard General Store 53 Portland St, Dartmouth, NS

Rolling Sea Tattoo 802 Prince St Suite 102, Truro, NS

G&G Computers 15 Arlington Pl, Truro, NS

My Home Mercantile 10 Inglis Pl, Truro, NS

The Nelson House Bed & Breakfast 138 Main St E, Stewiacke, NS

Truro Brewing Company 53 Inglis Pl, Truro, NS

Anther & Apiary 8 Dominion St, Truro NS

Or by pick up, email olivia@skindecision.ca

Accessible Online Banking?

[responsivevoice_button voice=”US English Female” buttontext=”Listen to Post”]
Gerianne sitting at her desk wearing her head pointer and typing with it

When out and about in the “real world” we encounter a number of barriers to accessibility. A step into a store that’s too high for a wheelchair to climb safely, sidewalks closed for construction, signs in the middle of paths making it impossible for a wheelchair, powerchair or stroller to pass, doors without automatic openers, the list goes on…

I tend to think of the internet as a place with fewer barriers to accessibility. Most computer users with mobility issues have figured out adaptations to use their hardware, people who are hard of hearing, Deaf, or deaf have access to closed captions, folks who are vision impaired, blind, or have reading comprehension problems have screen readers, people with writing difficulties have voice to text for typing (which doesn’t work well for people with accents or speech impediments but that’s another story), etc…

But sometimes a barrier crops up that I don’t expect, in a place I never imagined. Gerianne was looking into online banking and came across a prompt for a digital signature. This is a barrier to access for folks who don’t have the dexterity to use a mouse and don’t have a touch-pad connected to their desktops.

We’ve encountered other barriers to access online too and they usually involve proving identity or the “I am not a robot” things. Timed tests for proving you are not a robot are the most common ones we encounter but I’m sure there are more. We do our best to navigate through them but I’m growing more aware of the lack of inclusion in the design process in a space that I thought was truly for everyone.

User experience designers need to be more aware of the barriers their users encounter, the same way designers of physical spaces need to build that awareness. I don’t have a solution for any of these barriers but it is important to make note and call them out when we encounter them so that we can have a more inclusive, accessible experience, online and offline.

Having one “standard” model of human that all of our environments are build around prevents full, equal access. No two bodies or minds have the same abilities and that’s part of what makes the world interesting and fun.

And the Winners Are…

[responsivevoice_button voice=”US English Female” buttontext=”Listen to Post”]

We are pleased to announce that prizes for our first ever Disability Pride Parade have been awarded to:

Joe Andrew of Mobility Ryders

Danielle Miller and the Chilliwack Society of Community Living

Jodi Graham

Bobbi Bellamy and The Good Life Group at Abilities First

April Hubbard

Kayla Eichelt and Winder Inclusive Communities Service, especially Tyler and Chantal!!

Renee Lopez

Ann Ross

We are incredibly grateful to everyone who contributed to our Disability Pride Parade and look forward to continuing next year!