Tag: true stories

DisabilityPride.net Hires Its First “Social Media Marketing/ Public Relations Manager”

Left: Mary M. Wilson Right: Gerianne B. Hull

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About a year, or year and a half ago, I said to my friend/associate, “One day I really want and need to hire a Social Media Marketing/ Public Relations Manager. Running a blog as a business, with all that it entails – promotion, marketing, networking, website design an maintenance; plus continually having to hire my Personal Living Attendants and that whole process and then fitting everyone’s availability into my schedule and my needs, and also finding replacements when they call in sick, etc., etc. Hey…. who has time to write, right?

At times I wondered if the day of hiring such a person would ever get here, but alas it has arrived. Last week, I hired Mary Wilson, as DisabilityPride.net’s first Social Media Marketing/ Public Relations Manager, and I am ecstatic to have Mary on my team.

Mary grew up as part of the extended family of the Fredericton Community Living Society (FCLS). She worked as a relief attendant as one of her first jobs. Mary is a graduate of the University of New Brunswick, in 2007, with a BA in Philosophy.

Mary started working in online marketing in 2007 and she was the first online video producer for PartSelect.com and Fix.com, starting in 2009. She was soon asked to use her background in photography to help set up a video studio and spent almost the next 10 years creating instructional and how-to content to help people become more self-reliant and independent. Mary won the Atlantic Internet Marketing Conference’s Best Use of Video in 2013. She has produced almost 2000 videos for PartSelect.com and Fix.com, reaching over 40,000,000 views on YouTube. Mary also had a brief stint/crash course in Purpose, Public Relations and Marketing, as part of the small team working with Carol Cone – the mother of cause marketing.

She has been around the disability pride movement since she was very small. Her mother was an alternative education teacher and a founding member of the Fredericton Community Living Society. She passed her passion for inclusive communities on to Mary. One of Mary’s very first jobs was as a relief attendant, working with a woman who had watched her grow up and treated Mary as family.

Mary is the mother of two amazing daughters. She is an “amateur” (her word) nature photographer, a novice crocheter, and a voracious reader.

I am so looking forward to seeing what comes next for DisabilityPride.net with Mary onboard.

Lynda, with a “y”

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So my sister, Lynda, recently turned 71 (in September.) And yes, that’s Lynda with a “ y.” I love that about her name. I don’t know why it’s a “y,” or where it comes from, but it is, and for whatever reason, I think that’s pretty awesome. – Honestly, I think it’s almost as awesome as she is!

I’ve always said that God gave me only one sister, but in my opinion, He gave me the best one, at least for me He did. Lynda really is something, but I also think she probably got way more than she bargained for where I’m concerned.

As the family stories go, rumour has it that Lynda always wanted a baby sister. She wanted one so badly in fact that apparently she used to take our brother (who was born between us) and dress him up in her doll clothes (which I’m sure he really appreciated….. NOT!!!!!)

So when I came along, I guess that stopped, and Lynda now had the baby sister that she always wanted. But sadly, as I say, she probably got more than she bargained for and here’s why:

When I was around 16 months old and Lynda was about to turn 13, our mother had to go to St. John’s for some tests. She expected to be gone for only a few days and she assured Lynda that she would be back in time to throw Lynda a big 13th birthday party which would include anything Lynda wanted for her party.

But Mom didn’t return home until the next February. In St. John’s, doctors discovered that Mom had Breast Cancer and in the early ‘60’s the odds of beating breast Cancer were far less than they are today. Now, in no way am I saying it’s not a big deal today. I would never say that in a billion years, but back then, it was far less treatable.

So with none of us knowing this, (and communication wasn’t what it is today either) Lynda found herself having to drop out of school at that young age,(grade 9, I think) and basically became a surrogate mother, because she needed to look after me, run the house, and all which that entailed. And God love her. She did it so incredibly well and obviously, Lynda and I grew very close.

I remember when I was really little. For some reason I usually called her ‘La.’ (law) In the morning I used to wake up and call “La!… Up La!… Up!” She would usually came walking into the bedroom with some kind of greeting like “Oh, Sleepy-head’s awake finally, eh?” And then she would proceed to get me up. On the odd morning when she wasn’t home for whatever reason, I’d get really upset, (especially if it meant our father getting me up.) I would fuss a lot and say: “No Dad!… Not you! Go away. I don’t want you. I want La!… Where’s La?” I was never quite satisfied until Lynda returned.

I remember her taking me out a lot in my stroller. She’d take me anywhere and everywhere, even if our father disapproved – which he always did. Our father was kind of a paranoid old guy. Honestly, even when he was young he was old.

I remember him always saying, “Oh, you can’t go out it’s too cold!” or “Oh, you can’t go out because it’s too warm..” or “You can’t go out because it’s raining. You can’t go out because it’s too sunny. It’s too windy It’s too….” You get the point. But Lynda would wait for the right moment and then off we would go, on our latest adventure, wherever it was.

When I was 11, I moved to Ontario. Looking back, I can now only imagine the heartbreak that Lynda felt. In those days people did not travel, at least not anyone that we knew of. If you went away, you moved away. You were gone for good. So in all probability, Lynda must have presumed that she would never ever see me again. As years went by though, travel became more normal and I would fairly regularly fly back to Newfoundlandk, dividing my time between staying with Lynda’s family and my brother, Howard’s family.

I would find it hard to imagine that anyone has a sister who is more proud of them than I do. Lynda is amazing. She has always been immensely proud of all my accomplishments, all my success – everything. She has always, in her own way, been right there, cheering me on and always being the very proud sister.

When I graduated from college, Lynda (who rarely travels) flew up to Ontario for my graduation. She also made my complete outfit that I wore that day. When I got married not only did she make my complete wedding outfit but I learned later that she had taken a wedding picture and got it put in the local newspaper. A while later, when my ex and I moved to Newfoundland and started to get to know people, we met a woman who also had CP. One of the first things she ever said to me was this story:

“ I was in the mall one day and this woman came walking right up to me – almost in a marching strut. I didn’t know who she was – she didn’t know who I was, but she proceeded to tell me that she has a sister who has Cerebral Palsy, w\as a college graduate and just got married!” The woman went on to say: “After telling me this, she simply turned around and walked away.” This story made me laugh because yeh, I can see Lynda doing exactly that!

I have so many reasons to feel so blessed to be able to call this woman my sister. She is kind, caring, genuine, compassionate, and fiercely protective of the people she cares about.

Here is another one of my favourite memories of Lynda. One day we had gone down to Corner Brook to have lunch at the mall. As soon as we got to the food court, my ex did his usual dart off to go hit the music stores, book stores, etc. Lynda went to get our lunches, so I was just kind of sitting there watching all that was going on around me. I watch Lynda go over to this food concession place, where she was going to buy our lunch. All of a sudden I see her with this humongous basket of french fries! It was just gigantic!

I was sitting there thinking, “What the hell is she doing? We’re never going to be able to eat all those fries! Is my sister losing her mind, or what?” Then I see her turn and walk in a completely different direction than what I expected her to. So now I’m really thinking: “What the hell…..?” I was very confused and maybe even a little concerned about her mental state, but I continued to watch. She heads straight for another table with a group of school kids. There may have been 6 or 8 kids at the table, (I don’t know how many exactly,) but she walks over, plops the basket right in the middle of the table, turns around, and walks away. She then goes back to the food concession and orders other stuff. I just sat there completely floored and completely in awe at this woman. When she came back to our table she says: “You know, those kids…. That’s the only thing they’ll eat for lunch. They have no money, their parents are on welfare. How can they learn on an empty stomach? They need something in them!” Even now when I think about that, I’m still in awe. I still think: “Wow, if more people had that kind of generosity, spirit, and grace, what a different society we would have. What an incredible lady; and I happen to be related to her!”

One final memory of pride that I feel with this woman:
I was returning to Ontario from one of my visits to Newfoundland. The airline people had pre-boarded me. I had said my goodbyes and I was just waiting for the other passengers to board, when I felt this woman behind me stand up and tap me on the shoulder. I turned to look and there’s this little old lady. She kind of smiled and asked: “Are you related to Lynda ***?” I smiled proudly and said: “Yeh, I’m her sister.” The woman then said: “I thought so – because you look just like her.” I smiled and thanked her. Then I just sat there with such a good feeling of happiness; knowing that in many ways, I am like my sister and everyone says my sister is just like our Mom. So I guess I am also like my Mom, which gives me great joy in knowing that such a great woman lives on, through her daughters.

The Beginning – Again!

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Take #141…..

Take #235…..

Take #346…..

Take #1,263!

The first time I told someone of my plans to write my auto biography, I think I was about 12 or 13 years of age. The person I told, kind of chuckled and said: “Ahh Gerianne, why don’t you wait and live your life a little more first, so you’ll actually have something to write about.” At the time I was somewhat offended, but now I realize they were somewhat right.

Over the years I’ve started to write my life’s story a couple times, but it seemed that “life” always got in the way – weather it was the job of running a non-profit organization, for which my administrative responsibilities were vast and time consuming; or whether it was trying to be the best wife I could be to a now ex-husband – to make his many psychological, emotional and yes, physical/vision needs my #1 priority – well beyond my own needs and goals.

With all that quickly becoming my distant past, lately I once again have the strong urge and desire to get at it – to write the book that I’ve always held in my heart and in my thoughts. So, God willing, I will succeed this time.

From time to time, I may post little excerpts (such as this little bit above) on here, on a temporary basis. If you read any of them and like them, please let me know. I can use all the encouragement I can get for this huge undertaking.

I may also temporarily post some random articles of mine, that I’ll make available for digital purchase and download. If you like any of them and would like to show your support for what I’m doing, consider purchasing the digital copy. Your doing so will help me in a couple ways:

  • It will give me support and encouragement to keep going.
  • Honestly, it will help me with some of my financial needs and obligations – my blog’s hosting fees, my store’s security fees, needed software purchases and updates, travel costs for speaking engagements, and for possibly hiring a person specifically to assist me with my PR and Social Media needs.
  • Also, you will be helping me prove a couple people wrong – people who have recently suggested, (and I’m using the word “suggested” politely, as it was far more direct then that) said that I cannot make money, with doing what I’m doing. I believe that they are wrong. I believe I can. So now, (and if you know me at all) I know that their negative and narrow minded attitude is now adding an extra layer of motivation for me to prove them wrong – which I’ve repeatedly done with others, throughout my entire life. Attempting to do so doesn’t scare me. It honestly invigorates me and I would love your help in proving these people wrong.
  • So again, if you like what you read – if you gain insight, encouragement, your own motivation – by reading my work, please let me know; and if your so inclined to provide a little support financially, it will be appreciated indeed. I may also surprise you with a modest gift/reward of appreciation.
  • Also know that if for any reason, you don’t feel comfortable purchasing my products (whether they be tangible or digital) that’s cool. Continue to read, enjoy and send me your comments and words of support anyway. It’s all good and encouraging.

Happy reading!

Gerianne

Important Pieces of My Past


Over the weekend one of my attendants helped me reunite with some rather important parts of my past.

Actually, doing so has left me feeling kind of emotional about having these documents hanging on my wall again.

I worked damn hard for some of these documents; especially the Sheridan College and the Grace College ones. They didn’t deserve the neglectful treatment that they got. (Neither did I.) For years they were wrapped in newspapers – shoved in boxes – buried in storage. Then, for the past two years, they sat on a shelf in my living room, waiting for the person who promised to help me put them up, but never did.

I’m glad they’re up again. Thank you so much Ann Marie for making this happen. I’m also so glad I get the pleasure of knowing you. I hope we’ll stay friends, when I’m not your employer any more.

Another Unwelcomed Flashback

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It’s funny (or more honestly not funny) what can trigger a post-traumatic experience. Otherwise known as PTSD.

Many people think that PTSD only affects military and service people – firefighters, police, etc., and although it may be more common in those groups, PTD also affects individuals who have gone through other kinds of trauma, such as abuse.

The other morning at breakfast my attendant spilled her cup of coffee. My attendants all know that I’m pretty casual in my home, so I welcome them to make coffee for themselves, bring there own breakfast and stuff like that.

When this happened, she immediately kind of panicked, saying: “Ohhh my God! I’m so sorry! I’m so sorry!”

I said: “It’s okay kid. Don’t worry. It’s only coffee.”

But she kept apologizing, and calling herself clumsy and stupid.

Again, I reassured her. You’re not stupid. It’s not big deal. I know you’ll clean it up, and honestly, if this is your biggest problem today, you’ve got it made kid!” I joked that I was glad it’s not only me who does stuff like that.

We both laughed, and she said: “Yeh, you’re right.”

Then a few seconds later, as my mind went back a few years, I said: “Look, I will never treat you guys the way my ex treated me. Whenever I spilled something like that, he would instantly combust, screaming: “Jesus F**cking Christ!!!” at the top of his lungs, which would make me instantly apologize. Then 30 seconds later, when he had it cleaned up, he would look at me and say: “See, no big deal.”

What a mind fuck. If it was really no big deal, why was that his first reaction every time. It’s easy to overlook this kind of outburst as abuse, but it is. It stays with you. The fear of inducing that hostile reaction again stays with you, even years later.

During my marriage break up, my ex would tell me that if I ever spoke of anything like this – if I wrote about stuff that happened – stuff he said and did, he would sue me with Slander and Deformation of Character.

When I told this to a friend of mine about my ex’s threat, my friend laughed and said; “Look Gerianne, after my ex told the lawyer what he wanted to do; even if your ex could afford a layer at say, $500 a hour, the lawyer would charge him for that hour; then charge your ex another $500 for wasting the lawyer’s time; plus charge him again, while laughing their ass and booting him out of their office, for being so ridiculously silly. It’s only slander if it’s not true. It’s not slander if it is the truth.”

So I will continue to write, speak, and talk about abuse and the devastating effects on the human spirit. And my ex be damned.