Tag: history

Feeling Through is Not the Representation I Want to See

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By Mary Wilson

The Oscars for 2021 are pending and there is a huge slate of movies that have been nominated, with a record-breaking number of films centered on or staring people with disabilities.

Guess how many it took to break that record?

Three.

There are three films that are about the experiences of disabled people. One, Sound of Metal, is a feature film about a drummer who is losing his hearing and does not have any hearing-impaired or D/deaf actors in leading roles (there are minor roles and extras who are hearing-impaired). Crip Camp is a documentary that extensively features disabled people about a summer camp for disabled people that helped lead to the disability rights movement in the US. Feeling Through is a short film that features a deafblind supporting actor about an abled young man helping a deafblind man get home.

I don’t want to shit all over the strides made with actually seeing representation of real disabled people in film that are made with these three films. It’s an achievement that needs to be commented on but I will stop short of celebrating something that should have happened a very long time ago.

I have seen, loved and shared Crip Camp with everyone I thought would enjoy it. It addressed so very many things in a very human way. It was everything I could have hoped for in a documentary about people.

I have not seen Sound of Metal but I want to. I will probably engage in serious suspension of disbelief to get past the “Riz Ahmed isn’t HoH or Deaf” thing and I will probably have THOUGHTS and FEELINGS about it but… I’m a punk and metal fan so I’m willing to deal with those when they come.

That leaves the third film, Feeling Through. I made the decision to watch it after reading criticism of it from deafblind attorney and activist Haben Girma. I wanted to know if I should be annoyed at it or if I should be mad at it. I try really hard not to hate films without seeing them (except films by very specific directors-that-shall-not-be-named. Those I outright refuse to watch, no matter their artistic or cultural merits) even when I’m fairly certain there will be things I find, at best, to be misrepresentations and, at worst, to be absolute bullshit. Feeling Through is beautifully shot and the actors are very good. There’s a decent amount of chemistry between Tareek (Steven Prescod), an abled but housing-insecure young man and Artie (Robert Tarango), a deafblind middle-aged man.

That’s the end of my positive takeaways. Turns out, I should be mad at Feeling Through and you probably should be mad too. Lisa Ferris has an amazing analysis of the wide variety of problems with this movie from the perspective of someone who is herself deafblind. I encourage you to read her article on it. I am mostly just going to be echoing her sentiments with my own interpretation.

First and foremost, I strongly believe that Feeling Through is inspiration porn. If you are unfamiliar with the term, “inspiration porn” was coined by writer and activist Stella Young (https://www.ted.com/talks/stella_young_i_m_not_your_inspiration_thank_you_very_much/transcript?language=en). It’s a way to describe images and stories of marginalized people, almost always disabled people, doing normal daily activities, participating in “regular” life. These images and stories are implicitly used to “inspire” abled people because if a disabled person can do something, why shouldn’t or can’t you? I could go into why this is problematic but I will leave that for a later time. If you don’t see why such images are problematic, please, just trust me for now.

Artie himself is almost a caricature of inspiration porn but the way he is written lacks the awareness of the potential problematic nature of this characterization. He is just going about his daily life, trying to get home from a date (yay for giving some hints at sexuality in disabled people I guess). I call this a caricature because even for inspiration porn, Artie’s “struggle” to participate in the world is unbelievably naïve and lacking any fundamental understanding of how self-reliant and independent disabled people are/have to be.

Artie is portrayed as relying completely upon the support of strangers to help him navigate his attempt to get home from his date. The only tools he seems to have available to help himself are a series of pre-printed questions or requests and a notebook where he can write more specific information or questions. Although that may have been the norm for deafblind people 20 years ago, the proliferation of and inexpensive access to cell phones and digital braille display devices are an inescapable demonstration of the deliberate efforts of the filmmaker to keep Artie as “helpless” as possible to help the plot.

Because Artie is demonstrated to be virtually helpless without the intervention of strangers, his presence in the film makes it feel like he is a prop, not a person. He is objectified as someone who is there to help and, in being helped, he facilitates Tareek’s growth and change. He is not even the source of the inspirarion part of the story. Tareek is given that role and Artie is the object that allows Tareek to inspire us.

My final problem is that the main character is a housing-insecure young black man. I personally want more diversity of all types in film however, in this particular case casting a black actor is the opposite of what that means to me.

Spoilers ahead.

One of the first things Tareek does when Artie requests his assistance buying a drink in a bodega is rob Artie. He uses Artie’s money to buy himself a chocolate bar and pockets $10 of the change. Yes, Artie just thoughtlessly handed over his wallet to Tareek so he could pay for Artie’s drink, showing a disturbing level of naiveté but that’s problematic for other reasons. Tareek robs Artie. That’s what happens. A young, housing-insecure black man robs a disabled dude. The role could just have easily been played by any other young actor but the director chose a black actor. He chose to have a young black man rob someone. For the record, the writer/director appears to be an abled white guy. This is the first time in my life I’ve asked out loud why this role had to be played by a black actor because I could see no other reason for it than the writer/director having unexamined racist stereotypes playing in his head while casting.

Artie, because of the manufactured naivete in this narrative, does not notice the missing money. He is so oblivious and helpless that he apparently can’t even keep track of his own cash and the theft does not impact his reliance on and trust in Tareek for the rest of the evening.

But don’t worry. After helping Artie all night, Tareek realizes that he is not entitled to Artie’s money but instead of admitting to Artie that he stole from him, Tareek leaves the $10 in a homeless man’s empty coffee cup.

Spoilers over.

So, to sum up my feelings about Feeling Through in a more concise way; This is a piece of inspiration porn that objectifies and infantilizes a grown deafblind man for the purpose of villainizing and then granting absolution to a housing-insecure young black man. There is not one bit of this story that I find unproblematic. This is not the representation I want to see of anyone in film, especially not groups who have been consistently ignored or vilified by mainstream filmmaking.

Disability Pride History

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A brief celebration of disability pride in the recent history of the disability rights movement.

Thank you to Renee Lopez and Ann Ross for contributing these images

The Precipitous Enemy…… Doubt!

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Today I became abundantly aware of how pernicious DOUBT is. – Doubt of self, Doubt of others, Doubt of the good that YOU KNOW TO BE TRUE!!! Lets confront doubt with everything we’ve got in us!!!!

Doubt hurts! Doubt can and often does destroy! STOP DOUBTING!!!! (I’m telling myself as much as anyone.)

Taking My Own Advice

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A few days ago, while talking to my attendant, I realized something about myself, that I need to work on. I realized that I have to take my own advice.

I have a couple people in my life who I often tell: “You can’t let your past control your present. You can’t blame people & things from your past on your life now. How you feel about your present is on you.”

As I said this, I realized I’m kind of doing that. I have a situation in my life that I’m currently very anxious about. I’m hoping it will work out but I’m not sure. Sometimes I’m very positive and very hopeful. Other times I feel like doom and gloom is all around me.

When I went to see my mental health counselor last week and he asked me how I was. I replied (partly to make him laugh [I love making people laugh and smile]): “I’m feeling a little bipolar these days.”

His response: “Up. Down. Riding the wave huh?”

Yet there’s a grain of truth in that statement. My emotions seem to be all over the map lately and I suddenly realized I always assume the negative.

So as I was talking to Kristina, I wondered out loud: “Why do I always assume the negative? Why do I always assume the worst?” Okay, maybe not always, but often.

I try to keep positive. I do, but it takes constant effort, constant reminders to myself. The outcome could be great, so why am I assuming the worst.

As we were talking about this, I realized that some of this comes from 30 + years of being married to a man who was always negative. His first reaction was always to assume the worst. For instance, if I had said to him: “Why don’t we go for a walk?” His response would be: “Well, we have nowhere to go! I don’t want to just go walking.” Or if I said: “Let’s go bowling.” His response would have been: “Nahhh! It’s probably not accessible. And besides, how are you going to bowl? I can’t even see the lanes. Nahhh!”

Others throughout my life have also added their own negativity with all their “You’ll never…(s)”

But as I often tell others, you can’t keep blaming your past for your present. So I’m just now realizing that I need to not let my past affect my future. How will I do this? I’m not sure, one step at a time.

If anyone has any advice, drop me a line! I don’t want to be a nervous wreck and I also don’t want to mess up potentially great things coming my way. I don’t want to assume the worst. I want to assume the best.

DisabilityPride.net Hires Its First “Social Media Marketing/ Public Relations Manager”

Left: Mary M. Wilson Right: Gerianne B. Hull

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About a year, or year and a half ago, I said to my friend/associate, “One day I really want and need to hire a Social Media Marketing/ Public Relations Manager. Running a blog as a business, with all that it entails – promotion, marketing, networking, website design an maintenance; plus continually having to hire my Personal Living Attendants and that whole process and then fitting everyone’s availability into my schedule and my needs, and also finding replacements when they call in sick, etc., etc. Hey…. who has time to write, right?

At times I wondered if the day of hiring such a person would ever get here, but alas it has arrived. Last week, I hired Mary Wilson, as DisabilityPride.net’s first Social Media Marketing/ Public Relations Manager, and I am ecstatic to have Mary on my team.

Mary grew up as part of the extended family of the Fredericton Community Living Society (FCLS). She worked as a relief attendant as one of her first jobs. Mary is a graduate of the University of New Brunswick, in 2007, with a BA in Philosophy.

Mary started working in online marketing in 2007 and she was the first online video producer for PartSelect.com and Fix.com, starting in 2009. She was soon asked to use her background in photography to help set up a video studio and spent almost the next 10 years creating instructional and how-to content to help people become more self-reliant and independent. Mary won the Atlantic Internet Marketing Conference’s Best Use of Video in 2013. She has produced almost 2000 videos for PartSelect.com and Fix.com, reaching over 40,000,000 views on YouTube. Mary also had a brief stint/crash course in Purpose, Public Relations and Marketing, as part of the small team working with Carol Cone – the mother of cause marketing.

She has been around the disability pride movement since she was very small. Her mother was an alternative education teacher and a founding member of the Fredericton Community Living Society. She passed her passion for inclusive communities on to Mary. One of Mary’s very first jobs was as a relief attendant, working with a woman who had watched her grow up and treated Mary as family.

Mary is the mother of two amazing daughters. She is an “amateur” (her word) nature photographer, a novice crocheter, and a voracious reader.

I am so looking forward to seeing what comes next for DisabilityPride.net with Mary onboard.