Tag: human rights

Thoughts About Ariis Knight and a Call to Step Up

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Full transcript:

Hi folks. It’s been a pretty emotional afternoon for us at DisabilityPride.net, for myself and Mary. This afternoon we learned of the death of Ariis Knight, who had cerebral palsy, and actually, Ariis had to go to emerge and did not get the medical treatment she needed or deserved and consequently, she died.

A big part of what happened, once again, was because she had cerebral palsy. There was a probably an attitude of, indirectly believing that her life was less valuable than someone who does not have CP. Unfortunately, ever since Robert Latimer murdered, and yes, I mean murdered. I use that word deliberately because that’s actually what it was. He murdered his disabled daughter Tracy, who had CP and ever since that, I find that the media has a habit of always, almost always, linking CP with intellectual disability, which is actually not common at all. I wish with all my heart that the media and others would stop doing that. Because the truth is, a  lot of people who have cerebral palsy are actually very intelligent and our lives are as valuable as anyone else’s.

What happened when Ariis went to emerge, she was not allowed to have someone with her to help her to communicate, which is another problem. Often people, whether it be doctors, nurses, bus drivers, people assume they cannot understand the person and as I always say, whether you believe you can or you believe you can’t, you’re probably right. It’s about attitude, it’s about recognizing the value of a person who has CP. It’s about recognizing their contributions to the world. It’s about realizing that they have friends, family, people who love them, people they teach and they assume, as well as those who would *presume it’s a two-way street.

This attitude of assuming that somebody who has cerebral palsy also has an intellectual disability has to stop. It has to stop. As soon as possible, because obviously, lives are at stake. Ariis lost her life because nobody gave her the opportunity to adequately communicate her needs, to communicate what was wrong, to communicate her fears. That’s something I understand very well because I know how frustrating and humiliating it is when whenever people think I have a comprehension problem. I don’t but yet, at times, I will get on a city bus and the bus driver will say “do you know your stop?”

What an outrageously stupid question. “Do you know your stop?” Part of me always wants to say “nah, I just thought I would get on here and let you figure out where I ‘m going.”

But honestly, even if I said that, 9 out of 10 times the driver would not bother to listen long enough to really get my sarcasm. Another thing Mary and I were talking about, if it was someone else in ariis’s situation, if it was a deaf person, if it was someone new to our country, they would almost certainly be allowed to have an interpreter or someone with them. Why was Ariis not allowed this? Why was the person she chose not allowed to be with her? Yes, I know Covid-19 is happening, and that’s scary enough all by itself but when you’re in the situation that Ariis was in, not being allowed to have someone to help you, in the last moments of your life…

I’m sorry, that is not acceptable. That is not. It’s just unspeakable. Something needs to change. So, our way of honoring Ariis at DisabilityPride.net is to make this video and try to tell as many people as we can this should never ever ever have happened. This is not ok. And this needs to be addressed by government, by medical professionals, by everyone, churches, clergy, teachers. C’mon people, it’s 2020. Let’s get a grip. Let’s respect every human life. Whether you knew Ariis or not, I didn’t know Ariis, but I know we have lost something that we should never have lost.

So, please just, remember her and next time, let’s not have this happen again. Sadly I know it will, but it shouldn’t. Let’s try not to have it happen. Thank you.

Construction Season is Coming! Don’t Let This Happen Again!

As February ends, we can start to smell spring. With the warmer months come countless infrastructure and public works projects. With these projects comes signage. While we understand that some spaces become inaccessible due to the nature of construction, this is unacceptable! A whole sidewalk blocked with signage! It could have easily been placed on the green strip!

Please, please don’t let this happen again this year, HRM. We’re watching you.

International Day of People with Disabilities

Hi everyone! Mary here. Today we recognize the International Day of People with Disabilities. To celebrate, we attended a flag-raising, award ceremony and reception Dec. 2nd, 2019 at HRM City Hall. We had many interesting conversations, including an important take on the history of Disability Rights and Inclusion from Gerianne. She reminded us that is wasn’t that long ago, only 1980, that restaurants had the right to kick her out for no reason other than existing with a disability and wanting to eat.

Gerianne’s lesson in history is valuable reminder as to how far we’ve come and how far we have left to go to ensure the full inclusion of people with disabilities in every aspect of life. It was a stark reminder to hear Gerianne’s experiences after we were let in the side door, because the front door of City Hall is not accessible. Yesterday, a group of people walked into City Hall to be recognized, a group that would not have received the same treatment 30 years ago. We have much left to do but today, we will celebrate inclusion, diversity and uniqueness.

Good “Full Inclusion” Discussion With Our NS Barristers Association!

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Thank you to ReachAbility NS and the NS Barristers’ Society for hosting the Disability and Inclusion Awareness Workshop yesterday!

There were so many amazing conversations and ideas! We look forward to seeing what comes next

 

(photo & news by: Mary M. Wilson)

Lynda, with a “y”

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So my sister, Lynda, recently turned 71 (in September.) And yes, that’s Lynda with a “ y.” I love that about her name. I don’t know why it’s a “y,” or where it comes from, but it is, and for whatever reason, I think that’s pretty awesome. – Honestly, I think it’s almost as awesome as she is!

I’ve always said that God gave me only one sister, but in my opinion, He gave me the best one, at least for me He did. Lynda really is something, but I also think she probably got way more than she bargained for where I’m concerned.

As the family stories go, rumour has it that Lynda always wanted a baby sister. She wanted one so badly in fact that apparently she used to take our brother (who was born between us) and dress him up in her doll clothes (which I’m sure he really appreciated….. NOT!!!!!)

So when I came along, I guess that stopped, and Lynda now had the baby sister that she always wanted. But sadly, as I say, she probably got more than she bargained for and here’s why:

When I was around 16 months old and Lynda was about to turn 13, our mother had to go to St. John’s for some tests. She expected to be gone for only a few days and she assured Lynda that she would be back in time to throw Lynda a big 13th birthday party which would include anything Lynda wanted for her party.

But Mom didn’t return home until the next February. In St. John’s, doctors discovered that Mom had Breast Cancer and in the early ‘60’s the odds of beating breast Cancer were far less than they are today. Now, in no way am I saying it’s not a big deal today. I would never say that in a billion years, but back then, it was far less treatable.

So with none of us knowing this, (and communication wasn’t what it is today either) Lynda found herself having to drop out of school at that young age,(grade 9, I think) and basically became a surrogate mother, because she needed to look after me, run the house, and all which that entailed. And God love her. She did it so incredibly well and obviously, Lynda and I grew very close.

I remember when I was really little. For some reason I usually called her ‘La.’ (law) In the morning I used to wake up and call “La!… Up La!… Up!” She would usually came walking into the bedroom with some kind of greeting like “Oh, Sleepy-head’s awake finally, eh?” And then she would proceed to get me up. On the odd morning when she wasn’t home for whatever reason, I’d get really upset, (especially if it meant our father getting me up.) I would fuss a lot and say: “No Dad!… Not you! Go away. I don’t want you. I want La!… Where’s La?” I was never quite satisfied until Lynda returned.

I remember her taking me out a lot in my stroller. She’d take me anywhere and everywhere, even if our father disapproved – which he always did. Our father was kind of a paranoid old guy. Honestly, even when he was young he was old.

I remember him always saying, “Oh, you can’t go out it’s too cold!” or “Oh, you can’t go out because it’s too warm..” or “You can’t go out because it’s raining. You can’t go out because it’s too sunny. It’s too windy It’s too….” You get the point. But Lynda would wait for the right moment and then off we would go, on our latest adventure, wherever it was.

When I was 11, I moved to Ontario. Looking back, I can now only imagine the heartbreak that Lynda felt. In those days people did not travel, at least not anyone that we knew of. If you went away, you moved away. You were gone for good. So in all probability, Lynda must have presumed that she would never ever see me again. As years went by though, travel became more normal and I would fairly regularly fly back to Newfoundlandk, dividing my time between staying with Lynda’s family and my brother, Howard’s family.

I would find it hard to imagine that anyone has a sister who is more proud of them than I do. Lynda is amazing. She has always been immensely proud of all my accomplishments, all my success – everything. She has always, in her own way, been right there, cheering me on and always being the very proud sister.

When I graduated from college, Lynda (who rarely travels) flew up to Ontario for my graduation. She also made my complete outfit that I wore that day. When I got married not only did she make my complete wedding outfit but I learned later that she had taken a wedding picture and got it put in the local newspaper. A while later, when my ex and I moved to Newfoundland and started to get to know people, we met a woman who also had CP. One of the first things she ever said to me was this story:

“ I was in the mall one day and this woman came walking right up to me – almost in a marching strut. I didn’t know who she was – she didn’t know who I was, but she proceeded to tell me that she has a sister who has Cerebral Palsy, w\as a college graduate and just got married!” The woman went on to say: “After telling me this, she simply turned around and walked away.” This story made me laugh because yeh, I can see Lynda doing exactly that!

I have so many reasons to feel so blessed to be able to call this woman my sister. She is kind, caring, genuine, compassionate, and fiercely protective of the people she cares about.

Here is another one of my favourite memories of Lynda. One day we had gone down to Corner Brook to have lunch at the mall. As soon as we got to the food court, my ex did his usual dart off to go hit the music stores, book stores, etc. Lynda went to get our lunches, so I was just kind of sitting there watching all that was going on around me. I watch Lynda go over to this food concession place, where she was going to buy our lunch. All of a sudden I see her with this humongous basket of french fries! It was just gigantic!

I was sitting there thinking, “What the hell is she doing? We’re never going to be able to eat all those fries! Is my sister losing her mind, or what?” Then I see her turn and walk in a completely different direction than what I expected her to. So now I’m really thinking: “What the hell…..?” I was very confused and maybe even a little concerned about her mental state, but I continued to watch. She heads straight for another table with a group of school kids. There may have been 6 or 8 kids at the table, (I don’t know how many exactly,) but she walks over, plops the basket right in the middle of the table, turns around, and walks away. She then goes back to the food concession and orders other stuff. I just sat there completely floored and completely in awe at this woman. When she came back to our table she says: “You know, those kids…. That’s the only thing they’ll eat for lunch. They have no money, their parents are on welfare. How can they learn on an empty stomach? They need something in them!” Even now when I think about that, I’m still in awe. I still think: “Wow, if more people had that kind of generosity, spirit, and grace, what a different society we would have. What an incredible lady; and I happen to be related to her!”

One final memory of pride that I feel with this woman:
I was returning to Ontario from one of my visits to Newfoundland. The airline people had pre-boarded me. I had said my goodbyes and I was just waiting for the other passengers to board, when I felt this woman behind me stand up and tap me on the shoulder. I turned to look and there’s this little old lady. She kind of smiled and asked: “Are you related to Lynda ***?” I smiled proudly and said: “Yeh, I’m her sister.” The woman then said: “I thought so – because you look just like her.” I smiled and thanked her. Then I just sat there with such a good feeling of happiness; knowing that in many ways, I am like my sister and everyone says my sister is just like our Mom. So I guess I am also like my Mom, which gives me great joy in knowing that such a great woman lives on, through her daughters.