Tag: human rights

A Podcast Recommendation; Canadian True Crime

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The International Disability Day of Mourning is March 1st, we mark it every year here and remember the victims with heavy hearts.

One of the victims Gerianne and I discuss often is Tracy Latimer. Her murder was a shock to all Canadians and is still at front of mind when we think and talk about filicide of disabled people. The support her murderer has received, still receives, is something neither of us can wrap our heads around.

I have been on a bit of a true crime kick lately, listening to the Canadian True Crime Podcast on my frequent long drives dropping my kids off and picking them up from school. I’m going through the episodes, oldest to newest, and a few days ago I came across Episode 37, Tracy Latimer, originally released in December, 2018.

When I saw who the victim was for this podcast, I was immediately ready to delete all subsequent episodes from my phone, I was mentally preparing myself for a take that was sympathetic to Tracy’s murderer, as is so often the case but I was willing to give the host, Kristi Lee, a shot. She had impressed me with her reasonable and balanced take on many other crimes and I had a slight hope that she would be able to tackle this one with the same fairness.

I was right to give her a chance. I still got very angry listening to Tracy’s story and the story of her murder but not at the host. Lee presented the case well and was incredibly neutral in her discussion of the details of the case, the support Tracy’s murderer has received and the anger about both that has come from the disability rights community. I could not tell whether Lee supported Tracy’s murderer or thought his conviction was just.

If you are unfamiliar with the Latimer case and are interested in learning more, I highly recommend Canadian True Crimes Episode 37, Tracy Latimer. It does go into a lot of detail so if you’re uncomfortable with descriptions of murder, this may not be the podcast for you. I learned a fair bit about the case and about the push for adding “compassionate homicide” to Canada’s legal code.

Disability Pride History

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A brief celebration of disability pride in the recent history of the disability rights movement.

Thank you to Renee Lopez and Ann Ross for contributing these images

Launch of the COVID-19 Disability Rights Monitor

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The voice of disabled people is important and badly needed, especially when it comes to how coronavirus and COVID-19 have effected how an already marginalized group, with a wide variety of needs, access healthcare, basic necessities, and other supports during this unprecedented time. If you are disabled or work with an organization that serves people with disabilities, please share your voice and fill out this survey:

COVID-19 Disability Rights Monitor

“Evidence is emerging that persons with disabilities are being disproportionately affected by the Coronavirus pandemic and emergency measures being taken by governments worldwide. As governments rush to respond to the virus, it is more critical than ever to guarantee that measures taken are fully inclusive of persons with disabilities and prevent human rights violations from taking place.

With the endorsements of the United Nations Special Rapporteur on the Right to Health, Mr Dainius Pūras, and the UN Special Rapporteur on the Rights of Persons with Disabilities, Ms Catalina Devandas Aguilar, a coalition of six disability rights organisations is today launching a major international monitoring initiative entitled “COVID-19 Disability Rights Monitor” to conduct rapid independent monitoring of state measures concerning persons with disabilities. The first element of this global initiative is the launch of two surveys requesting official information from governments and requesting the testimonies of persons with disabilities and their representative organisations. The surveys aim to collect information about what states are doing to protect core rights of persons with disabilities including the rights to life, access to health and essential services.”

DisabilityPride.net Virtual Parade – in recogition of NAAW

We are inviting any group, organization, individual, entrepreneur, artist, or any other category of persons, who holds a positive attitude on disabilities, disability issues, and disability rights, to submit a representational image, or a 30-SECONND video, to: virtual2020parade@disabilitypride.net no later than Wednesday, May 27, 2020, at 11:59pm. We encourage you to be creative, imaginative, and get inspired! There WILL be prizes!!!!!!

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We are inviting any group, organization, individual, entrepreneur, artist, or any other category of persons, who holds a positive attitude on disabilities, disability issues, and disability rights, to submit a representational image, or a 30-SECONND video, to: virtual2020parade@disabilitypride.net no later than Wednesday, May 27, 2020, at 11:59pm.

We will be hosting a livestream featuring these images and videos on our Facebook page

We encourage you to be creative, imaginative, and get inspired!
There WILL be prizes!!!!!!

Disability Advocates Call for Immediate Change to Hospital Policies Designating “Essential” Supports/Visitors following the Death of Ariis Knight

MEDIA RELEASE

 

For Immediate Release                                                                May 5, 2020

The Council of Canadians with Disabilities (CCD) and the Disability Alliance British Columbia (DABC) are calling on all hospitals in every province and territory in Canada to immediately revise their policies designating “essential” supports/visitors to include personal support workers, healthcare aides and family members who can assist people with disabilities in communicating with healthcare providers. 

This call to expand the definition of “essential” supports/visitors to reflect the support needs of people with disabilities comes after the death of Ariis Knight, who had cerebral palsy and communicated with her family and support workers through her eyes and facial expressions. Ms. Knight was admitted to Peace Arch Hospital in White Rock on April 15 with symptoms of congestion, fever and vomiting, but did not have COVID-19.  Her support staff were not permitted access due to restrictions put in place during the pandemic. Not long after being admitted, Knight was put on end-of-life care, and died days later. She was 40 years old.

“Ariis Knight died isolated, utterly alone, and, most chillingly of all, silenced,” said Dr. Heidi Janz, Chair of CCD’s Ending-of-Life Ethics Committee, who is also a member of the federal government’s COVID-19  and Disability Advisory Group. “No one gave her the means to communicate with her family or her medical team. Her basic rights as a human being were violated.”

Dr Natalie Spagnuolo, a member of CCD’s Social Policy Committee, agrees. “While it is true that hospital departments have the authority to grant visitor exemptions on a case by case basis and at their own discretion, this does not guarantee equitable access to health care for patients who rely on human supports in areas such as communication and decision-making – including many individuals with intellectual disabilities. These individuals need to be assured that they will not be separated from their support person upon admission.”

Pat Danforth, of DABC, underscores the urgent need for a change in hospital visitation policy. “Family and support teams can provide critical information, communication support, and decision-making support and comfort when people with disabilities are hospitalized. They should be seen as not just visitors, but essential partners in care.”

The groups are calling on Canada’s Minister of Health, Patti Haidu, to work with her provincial counterparts to ensure that the policies designating “essential” visitors/supports are immediately revised to include personal support workers, healthcare aides and family members who can assist people with disabilities, including many individuals with intellectual disabilities,in communicating with healthcare providers. 

“Unless urgent action is taken,” said Janz, “Ariis Knight could end up being just one of hundreds of people with communication disabilities to die alone and silenced.”

FOR FURTHER INFORMATION, CONTACT:
Dr. Heidi Janz – Email : hjanz@ualberta.ca

Chair, CCD Ending-of-Life Ethics Committee

Dr Natalie Spagnuolo – Email : natalie.spagnuolo@gmail.com

CCD Social Policy Committee

April D’Aubin – Email: april@ccdonline.caapril@ccdonline.ca

Research Analyst